Countdown to Ciaran's 4th birthday

Lilypie Fourth Birthday tickers

Saturday, March 14, 2009

Priceless...

WHEELCHAIR...$5,678


STANDER/W TABLE...Donated, thank God, if not, it would have been $3,000

WALKER...this one was donated, but the one that was ordered for me was about $2,500





KAFO's...$3, 700


Special Shoes...$75.00



TRICYCLE...$300







GLASSES..$300 (Still waiting on insurance to reimburse from last Sept)
Mommy and I travelling to Phoenix (a 4-6 hour trip) 42 times over the last two years
Juggling 4 therapy appts a week (Physical, Occupational, Speech, Developmental Specialist)
4 surgeries to date from a brain surgeon...BILLIONS, I'm sure!!
The opportunity to see our baby girl Riley STAND UP...
to see her progress mentally like any other two-year old...
to see her ride a bike and feel the wind through her hair...
to have her healthy...
to HEAR her say, rather yell "MOMMY"...
to HEAR her say, "HI DADDY" everyday, nonstop, for the first 20 minutes when Daddy gets home from work...
to have her grow physically at the right height and weight for her age...even if it is on PediaSure...
to see her throw temper tantrums like any other two-year old...
to hear her SCREAM at the top of her lungs just because...
PRICELESS!!!
Gee, Mommy could get a new car if we traded in all my equipment...isn't that crazy?!?! Just kidding, Mommy doesn't want or need a new car but isn't it an interesting synopsis???

4 comments:

Anonymous said...

It is an interesting synopssis.....And it is amazing how much she has accomplished in the last year it just seems like since her last surgery they have been endless.....PRICLESS!!!!!Love UUUUU Oma

Anonymous said...

Miss C - YOU are Priceless!

Love You!
Aunt Norie

Jessica said...

Awesome!

Anonymous said...

That beautiful, amazing, precious, and adorable gift from God is worth every cent! Ciaran is amazing! I just love this journal entry! Thank you for sharing your journey with me. It is great to be able to have someone else understand what we are going through!
Sometimes I get upset with how the medical industry charges insane prices for these thing, and take advantage of the disadvantaged! I also have had that same thought cross my mind, "We could have bought a new car at these prices!" But it is a waste of my time to stress out over things I can not change!
I hope Ciaran is healthy and well! Hurray, Spring is finally here! Take care and God Bless! :o) Heather Bowman (Danielle's mommy)