On Friday, March 27, I had my annual spina bifida clinic. Mommy, Daddy and I left at 3:30 am to arrive at St. Joseph's Hosp for a renal ultrasound at 8:00. Then we went next door to the CRS clinic for our day of appts. First we saw a pediatrician that thought I was doing wonderful!! I am growing well. I am in the 15 percentile for length and 25 percentile for weight....but what do those charts mean anyway??
Then we saw a urologist that said my kidneys looked great!!! No reflux of urine...Super Yea!! We talked with a psychologist, a child life expert and the ladies from the AZ Spina Bifida Association. Mommy wanted to have a word with Jenny, the SB clinic coordinator, to let her know that after lunch, we did NOT want to meet with the orthopedic doctor because we had moved my orthopedic care to Shriner's Hosps. Normally, there are 3 ortho docs at CRS and they rotate on Fridays for the SB clinic. Well, guess who's turn it was this week....Dr. Vu. If you don't know who he is, please see previous posts. In a nutshell, we CAN NOT stand him. So, Mommy told Jenny she did not even want to see him or have him come into our room. After lunch, we saw Linda, the physical therapist, and an O/T. Linda, the P/T, agreed with Ann, my P/T at home, that my new braces are super terrific but I still can not stand up on my own. Besides getting my left foot to stay straight, the main objective for the braces was to enable me to stand up...and I still can't. I need HKAFO's. They would start at my hips and go down...helping me to support my weight. Mommy is going to have to take steps to see what we can do about this. I also don't have my new walker yet. It is going to have forearm troughs that might help me to stand straighter.....we'll see.
When we were all done for the day, we booked it home. It was so cool to have Daddy with us for the day. Mommy was able to sit in the back with me on the way home...it was so nice to have company with me =)
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