Countdown to Ciaran's 4th birthday

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Monday, October 19, 2009

Tethered Cord Again??


Okay, so by now you are asking, "What's goin' on with Ciaran?"  Well, as many of you already know, she had a detethering last November.  It seems her spinal cord has retethered.  We are scheduled for an MRI on Nov. 9 to confirm this.  Some of the signs that Mommy saw were:  the curvature in my back is getting worse and worse.  A small dimple started forming in my scar about 3 months ago.  My issues with bowel management are completely out of the window.  Mommy can't get me to go for nothing.  It's very frustrating.  There have been changes in my bladder control also.  I am full an hour to an hour and a half after being cathed.  Crazy stuff.  Oh Yeah, there's the attitude thing.  I am sure whiny when I shouldn't be. 
When we went to our Shriner's orthopedic clinic a few weeks ago, they partially confirmed Mommy's fear.  Once they took x-rays of my back they said the curve was up to 43 degrees.  It was 35 degrees in February.  That's 1/8 of a circle.  (I don't know how my daughter can handle the pain sometimes)  The Shriner's docs are also waiting on the results of this MRI to see what step they are going to take next.  I may have to have 2 surgeries within the next couple of months.  It's very obvious there is something wrong, Mommy just wishes it would not keep happening.  Isn't there anything they can do to protect my cord so the scar tissue doesn't grab a hold of it.  We haven't spoke with the neurosurgeon yet...we will see him on Nov. 10.  Maybe he will have an answer to that question.

Monday, October 5, 2009

Ciaran CRAWLED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Mommy wasn't sure if I would ever crawl on all fours. I currently commando crawl and boy, am I fast that way. Mommy remembers another online friend of ours, Caleb, that began to crawl around the age of 3...needless to say, Mommy didn't forget that. And now that I am 3 months from my 3rd birthday, I can do it too!!! I realize the video is very dark (Sorry) but you can see me on all fours. Woo-hoo!!


video