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Monday, October 19, 2009

Tethered Cord Again??


Okay, so by now you are asking, "What's goin' on with Ciaran?"  Well, as many of you already know, she had a detethering last November.  It seems her spinal cord has retethered.  We are scheduled for an MRI on Nov. 9 to confirm this.  Some of the signs that Mommy saw were:  the curvature in my back is getting worse and worse.  A small dimple started forming in my scar about 3 months ago.  My issues with bowel management are completely out of the window.  Mommy can't get me to go for nothing.  It's very frustrating.  There have been changes in my bladder control also.  I am full an hour to an hour and a half after being cathed.  Crazy stuff.  Oh Yeah, there's the attitude thing.  I am sure whiny when I shouldn't be. 
When we went to our Shriner's orthopedic clinic a few weeks ago, they partially confirmed Mommy's fear.  Once they took x-rays of my back they said the curve was up to 43 degrees.  It was 35 degrees in February.  That's 1/8 of a circle.  (I don't know how my daughter can handle the pain sometimes)  The Shriner's docs are also waiting on the results of this MRI to see what step they are going to take next.  I may have to have 2 surgeries within the next couple of months.  It's very obvious there is something wrong, Mommy just wishes it would not keep happening.  Isn't there anything they can do to protect my cord so the scar tissue doesn't grab a hold of it.  We haven't spoke with the neurosurgeon yet...we will see him on Nov. 10.  Maybe he will have an answer to that question.

3 comments:

Cassie said...

I'm so sorry Wendy. I can only imagine how frustrating this must be. That is not an easy surgery and I'm sure it is so hard watching her go through this. I'll be praying for you guys.

Anonymous said...

Dadgummit! You tell them Drs. to get you "straightened" out!

Love You!
Auntie Norie

Anonymous said...

Baby Girl,

You tell them Drs. no more fix it for good this time PLEASE cause I want to continue to crawl and amaze them by showing them NOTHING is going to stop this little ANGEL!!!!!!!

LUV
Auntie Sharon in Vegas